UCLA CHAMPION Study (Chromatinopathies and Autism: Motor Phenotyping and Indicators of Neurodevelopment)
This study is being conducted both in-person at University of California, Los Angeles and virtually. Eligible children anywhere in the United States can be enrolled – study materials would be mailed and assessments are administered via videoconferencing if travel to Los Angeles is not feasible.
The CHAMPION Study is being led by Dr. Rujuta B. Wilson, MD, a neurodevelopmental pediatric neurologist and researcher at UCLA who studies neurodevelopmental conditions. This study is enrolling children 1 to 5 years old with KAT6 Syndromes or other Chromatin Modifying Disorders (also known as Chromatinopathies) AND children with autism without a known genetic condition.
As a part of the study, behavioral, cognitive, and autism symptom assessments of your child will be administered. In addition, your child would be asked to wear small sensors (movement trackers) on his/her wrists and ankles during the day at home. Lastly, a parent interview is conducted to gain further insight into your child’s medical history, behavior, and development.
Your child will receive up to $100.00 for participation and you will be provided verbal and written feedback about your child’s development.
If you are interested in having your child participate in this study or would like to seek additional information, you can contact the study coordinators via email or phone: RQLy@mednet.ucla.edu or SereenWong@mednet.ucla.edu / 310-206-1045.
