KATwalk in the News
Cedar Park Family Raising Awareness for Their Daughter’s Rare Condition
KatWalk Raises Awareness for Rare Disease Affecting 2 Long Islanders
Local Boy Fights Rare Disorder
Nyack Family on Mission to Help Children with Rare ‘KAT6A/KAT6B’ Disease
Press Archive
Spring Lake Stories- Katie Bator – September 26, 2023 (Begin at minute 30:22)
KAT6 Foundation on Laughter Saves Lives TV Show – March 1, 2023 (Begin at minute 9)
Rare Disease Day KAT6 Awareness TV News Segment – February 18, 2023 (In Spanish)
KAT6A Highlighted for Rare Disease Day on Your Child’s Brain Podcast – February 2, 2023
Wexford Family to Discuss ‘Lámh’ Sign Language on Late Late Show – October 21, 2022
Lori May Stars on “Dizzy Deliveries”- an Irish TV Program – October 2022
Elidh’s Story: A Rare Discovery – February 28, 2022
7NEWS Melbourne – 7 News | DNA mapping
Association for Science in Autism Treatment
Bradford Boy 1 of 248 People Worldwide with Rare Genetic Disorder
Cape Coral Child Only the 80th in the World Diagnosed with Rare Disorder
Cape Coral Child on Wink News TV
Community Helps Boy with Rare Disorder Build Halloween Costume
Creative Minds: Looking for Common Threads in Rare Diseases
Dan Harrison – Visit with Nuneaton & Bedworth Police
DECIPHER: Fueling Rare Disease Research
Diagnosis of Rare Disorder Leads to Even More Progress for Elena
Finding Independence: a Documentary by Riona McCumskay
From Global Delay to Literary Award
Genome Testing Brings Quicker Diagnosis to Bronson Children’s Hospital Patients
KAT6A Syndrome: Advances on the Genetic Bases and Clinical Picture of a Rare Disease
KAT6A Syndrome and Cerebral Palsy – Jane and Carter – Beauty with Purpose
KAT6A Syndrome: Pathophysiology, Diagnosis, and Treatment
Living with a Rare Genetic Neurodevelopmental Disorder
Local Parents Celebrate World Rare Disease Day – Barrie 360
Man Runs Coast to Coast to Bring Awareness to Rare Diseases
Murdoch Children’s Research Institute Annual Report 2016
NORD: Featured Interview with David and Sam
NORD with KAT6A Rare Disease Advocacy Story
‘One in a Million’: Emma’s Odho Syndrome Makes Her Not Want to Eat or Drink
Parenting a Child with KAT6A – Audrey Conley – Mothers Of Misfits Podcast
Rare Disease Day – Emerald’s Adventures
Rehab Me Intensive Collective Giving Families a Chance
Scientific Advancement – Chan Zuckerberg Initiative
Splitters Creek Toddler First Confirmed Case in Australia of Genetic Mutation
Valerie Arboleda Uses Big Data to Unravel the Biology of a Rare Disease
