Empowered Grant

What is an Empowered Grant?

It provides funding for the purchase of assistive equipment and technology to individuals diagnosed with KAT6A and KAT6B syndromes. Assistive equipment and technology can enable individuals to participate more fully in society, care for themselves, reach educational goals, build stronger connections, improve communication, and lead to social and emotional growth.

Assistive equipment includes but is not limited to: iPads, AAC software, gait trainers, standers, adaptive switches, weighted blankets, eye glasses, feeding tools, and therapeutic swings.

Today, we are proud to expand this program to include reimbursement of expenses for therapy treatment. This includes private speech therapy, occupational therapy, physical therapy, ABA therapy, feeding therapy, vision therapy, hippotherapy, aquatic therapy, music and art therapy.

Visit the family resources page to download the application, which is available in various languages.

What are the eligibility requirements?

The individual you are applying for must have a diagnosis of a KAT6A or KAT6B gene mutation. All applicants must provide a genetics report.
The individual must have developmental delays that require assistive or therapeutic equipment or technology. Applicants are required to provide an Individualized Education Program (IEP), Person Centered Plan (PCP), psychological assessment or other therapy report, which proves developmental delay is present in the individual.
The individual cannot have a parent or guardian on the Board of Directors of the KAT6 Foundation.
Applicants can apply for one grant per year.
Families do not need to live in the United States to apply; our mission is to support the international KAT6A and KAT6B communities.

Applications will be accepted beginning January 1st each year.
Grants will be rewarded in order of receipt. Email kat6aempowered@gmail.com to request an application translation.

Download Application

Rare As One Network – Cycle 1 Impact Report

We are delighted to share that the Chan Zuckerberg Initiative’s, Rare As One Network Cycle 1 Impact Report, is now live on CZI’s website. The report includes our foundation’s individual and collective accomplishments during and after the grant period (2019-2023). Additionally, we are excited that the report and its key findings were published on December […]

Call for Research Proposals

This call for proposals invites research across basic and translational sciences aimed at improving outcomes for individuals with KAT6A or KAT6B gene variations. The foundation has historically funded individual research projects in the range of $10,000 and $50,000 annually. If you are interested in submitting a proposal outside of this range, please contact the foundation […]

Attention Researchers

ATTENTION RESEARCHERS: The KAT6 Foundation is addressing a critical research priority raised by families—gastrointestinal challenges faced by children with KAT6A and KAT6B. This population experiences a concerning increase in mortality due to poor GI motility and perforation. Tragically, we recently lost another child to GI perforation, which has heightened anxiety and urgency within the community. […]

Make a Difference

Help us support people and their families living with KAT6A and KAT6B syndromes. Your donations will fund vital research into KAT6A and KAT6B gene mutations and provide assistive equipment, technology, and therapies to families through our Empowered grants. All donations are tax deductible in the US and go to KAT6 Foundation, a nonprofit 501(c)(3).

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