Save the Date! KAT6 Family Weekend: November 6 – 8, 2026

We’re excited to share that our 2026 KAT6 Family Weekend will be held in Dallas, Texas! Dallas was chosen thoughtfully with our families in mind. Its central location, easy access to a major airport, and proximity to a highly respected medical center make it a welcoming and convenient place for our community to come together, […]

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Rare Disease Day 2026: February 28th

It’s time to gear up for International Rare Disease Day! We invite you to wear stripes and KAT6 awareness clothing to show your solidarity with our ultra-rare community. Last year, families across the KAT6 community advocated for Rare Disease Day in their local communities, schools, and even in the press. We hope you will join […]

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