Hello everyone,

I got naturally pregnant in 2013. During pregnancy, the diagnosis of hydronephrosis in two kidneys was reported in the 23rd week at the baby and then issue was followed by doctors.

A caesarean operation was performed at the 38th week due to a decrease in the water in the uterus and an increase in hydronephrosis in the infant’s kidneys.

On February 18 . 2014, Our little boy Rüzgar was born. When we saw him the first time , The doctors told us that Rüzgar was trapped in my abdomen and that he had an uncut testis.

Rüzgar was circumcised with the diagnosis of hydronephrosis in the first week after his birth. Circumcision regulated the left kidney function of Rüzgar and a month later , it was decided by the doctors to undergo surgery for left inguinal hernia.

When Rüzgar was three months old, we noticed that he did not make any eye contact with us and did not follow us. We decided to go to a doctor about this. The doctor said this was not a big problem and they would follow this issue. They also advised us let Rüzgar to watch the cartoons on the television. Doing this, still did not make any progress but we followed the instructions.

In all these processes, Rüzgar was fed with my breast milk. As his sucking reflex was not so good, we fed him my milk with glassess.

When Rüzgar was six months old, he had epileptic seizures. After the result of EEG, we started to use a drug called Sabril and the result of the brain MR was clean. The EEG results in later processes were clean. In the meantime, a serious problem of constipation did not leave us. He was fed with breast milk for approximately 7 months.

During this process, the kidneys were examined frequently . The functions of the left kidney were stabilized but the doctors decided to operate for the right kidney . Hydronephrosis was rapidly enlarged, and kidney stones were made, and the stone pain began to be serious.

On the other hand, Rüzgar started physiotherapy training and an intensive training was going on. We changed the drug Sabril with Convulex syrup for Rüzgar ‘s epilepsy seizures ,because of the serious side effects for eyes . We are still using Convulex Syrup as 75 cc in the evenings – 75 cc in the mornings.

Our neurologist thought that different medicines would be good for Rüzgar . For this reason , we used three curing Cortexin needles. Later, we used following drug, which is used by homeopaths in the name Cerebrum, for three months. In fact, we tried a diet called GAPS, but we decided that it was not suitable for us because of the kidneys. But I think this diet was good.

In the meantime, a diagnosis could not be found, Doctors told us that he was more close to autism.

When Rüzgar was three years old , we went to the genetic doctor. We did some test given by the doctors , but due to lack of technology in Turkey in that time , the prognosis could not be make . The doctors also informed us that the heart of Rüzgar should be checked. We quickly went to a doctor about the heart and learned that there was a hole in the heart that was not serious, but which had to be followed up. This process is still followed up by doctors.

In addition, we have started physical therapy, pool therapies, sensory integration training, and physical therapy using the Anat Baniel Method. With the help of these lessons / trainings, Rüzgar began to sit and crawl. Those days he didn’t make a lot of noise, now he’s turned into a kid who always shouts and tries to make sounds. Now he is standing on his own by the window and started to walk side by side. He still can’t stand up alone, but he can stand up, with support.

Controls of the kidneys is still continuing . In addition, we are in constantly checked because the kidney is still an issue .Besides all this he drools alot, we call it honey mouth 🙂

We went to a doctor in Uster city in Switzerland, which is recommended to us about eye focus. He gave us some lights and sounds. Rüzgar can be a good musician in the future , he has a good ear for music and rhythm.

He is the happiest and the most peaceful child of the world When i look at him i thank God for the moments i spent with him . Everyone’s story is different, I know every child is special, but when you look at Rüzgar, especially when your eyes meets his eyes , you will get overfloated with
magic .

Unfortunately we have no idea how to reach him and how to get in his world.

I hope you can be a light and hope for Rüzgar and us.

Written by Aysun