Our fifth annual walk event will take place September 10th – 30th. You can choose to participate virtually or attend an in-person walk at select cities around the world. We invite families and friends of individuals diagnosed with KAT6 syndromes to raise awareness during this time. The KATwalk fundraiser is a vehicle that enables everyone to participate at the activity and/or donation level they choose.
HOW CAN YOU SUPPORT THE KATWALK?
IN-PERSON walks will take place in the following cities on the specific dates/times listed below:
SEPTEMBER 10th:
Spring Lake, MI, USA- 10:30 AM
(See “Team Benjamin“ for details)
Springfield, IL, USA- 10:00 AM
(See “Wyatt’s Warriors“ for details)
Stuttgart, GERMANY – 11:00 AM
(See “KAT6 Friends” for details)
Majorca, SPAIN – 18.00
(See “Camina amb na Victòria” for details)
SEPTEMBER 11th:
Bethesda, MD, USA – 10:00 AM
(See “Chloe’s KATwalkers“ for details)
SEPTEMBER 17th:
Burlington, Ontario, CANADA – 2:00 PM
(See “Toby’s Team” for details)
Detroit, MI, USA – 11:00 AM
(See “Gigi’s Guardian Angels“ for details)
St. Louis, MO, USA- 10:00 AM
(See “Team Marin and Emma“ for details)
Sydney, NSW, AUSTRALIA- 10:00 AM
(See “Sydneysiders KAT6A Crusaders“ for details)
SEPTEMBER 18th:
Brisbane, Queensland, AUSTRALIA – Time TBD
(See “Ginger’s Ninjas“ for details)
Long Island, NY, USA – 10:30 AM
(See “Team Shiffy“, “The Tom Squad” or “Will’s Warriors“ for details)
Paso Robles, CA, USA – Time TBD
(See “Team JACKMAN“ for details)
West Greenwich, RI, USA – Time TBD
(See “Team Hadley“ for details)
*All in-person registrants will receive a t-shirt and other items on the day of their in-person walk event.
PARTICIPATE VIRTUALLY
If you can’t join us in person, we encourage you to register for a VIRTUAL walk! (free)
Choose any date between September 10th and September 18th to walk/run/ride. You can join us from wherever you are by organizing a casual KATwalk for a small group or by participating on your own. You can extend the message and broaden support by joining or creating a fundraising team and sharing this page with your friends and family.
Be sure to show your solidarity with families all over the world by ordering the 2022 KATwalk t-shirt from our online shop in August at https://kat6a.org/shop/.
T-shirts will be shipped directly to your home (international shipping is available). Be sure to share your photos with us on social media.
BECOME A FUNDRAISER
We encourage you to create a fundraising page. You can join an existing team or start your own. Invite team members to expand your network to help you reach your fundraising goal. You will need to select the register button to become a fundraiser and follow the steps in your KATwalk 2022 confirmation email.
Download the official host toolkit to help you through the registration process!
Check the leaderboard frequently to see how you rank. Our top fundraisers will receive KAT6 Foundation awareness gifts. Virtual fundraising participants will be mailed their rewards.
DONATE
Your donation goes directly to the KAT6A Foundation, a 501(c)(3) organization supporting families and funding efforts to identify therapies for KAT6 syndromes.
Please check if your employer will match your donation when you fill in the donation form. Donations will be accepted through the end of October.
REGISTRATION INFORMATION
Adult Ticket (age 18 and up)
US$25.00
This is an adult ticket to an IN-PERSON walk event. Please make sure you choose your t-shirt size at checkout, which you will pick up on the day of the event. Adult tickets help cover the cost of the fees associated with holding the event such as permit fees, merchandising and more.
Child Ticket (ages 4-17)
US$10.00
This is a child ticket to an IN-PERSON walk event. Please make sure you choose your child’s t-shirt size at checkout, which you can pick up on the day of the event.
Individual Diagnosed with KAT6 Syndrome Ticket
FREE
At the KAT6A Foundation, we want all individuals diagnosed with KAT6A and KAT6B syndromes to know how much we care about them. It is our pleasure to provide you a FREE registration to an IN-PERSON walk, which includes a t-shirt. Please make sure you choose your t-shirt size at checkout, which you will pick up on the day of the event.
Virtual Participant
FREE
Walk with us in solidarity in your own neighborhood with your immediate family or invite some friends to join you! We hope you will help us reach our fundraising goal by joining a team.
My family is HOSTING an IN-PERSON walk event.
FREE
This registration is for families hosting IN-PERSON walk events listed on our landing page. You can only register for this if you have been approved as an official host by the KAT6 Foundation.
WHY SUPPORT THE KATWALK?
- BUILD a stronger support network for people with KAT6 syndromes and their families by assisting caregivers when they need help the most through support groups, webinars and conferences.
- EMPOWER families by providing grants for assistive equipment, technology and therapies.
- SUPPORT individuals diagnosed with KAT6 syndromes by funding groundbreaking research that could lead to a treatment.
- EDUCATE health care professionals to improve quality of patient care, accelerate diagnoses through genetic testing, and expand our KAT6 medical network.
OUR MISSION
The KAT6 Foundation supports people and their families who are living with KAT6A and KAT6B syndromes around the world. We advance scientific research aimed at developing treatments and spread awareness of KAT6 syndromes so they can be more easily identified, treated and studied.
WHAT ARE KAT6 SYNDROMES?
KAT6 syndromes are rare diseases resulting from mutations in KAT6A and KAT6B genes. KAT6 genes are known as epigenetic regulator genes such that they open our DNA to make the right genes available at the right time for our bodies to function properly. Like thread in a spool, the DNA inside our cells is tightly wrapped. The timing of when our DNA becomes unraveled, to allow our genes to perform their function at the right time, is critical to their development. Therefore, KAT6 genes do not just serve one small role, rather, they control the function of a wide variety of genes across our chromosomes.
