International Rare Disease Day: February 28, 2025

It’s time to gear up for International Rare Disease Day!

We urge you to wear stripes and KAT6 awareness clothing to show your solidarity for our very rare community.

Last year we had several families advocate for RDD in their communities, schools and even in the press.

Purchase an awareness T-SHIRT or other merch from The KAT6 Foundation Shop. We have several different “Rare” t-shirt designs to choose from to show your support for individuals living with KAT6 and other rare diseases.
In an effort of global solidarity, you are invited to light or decorate your home with the Rare Disease Day colors at 7 PM your local time on February 28, 2025. #LIGHTUPFORRARE
SHARE YOUR STORY with us and we will feature you in our blog and on social media. Email your story to support@kat6a.org. Include a feature photo.
Spread awareness in your child’s school. Use this toolkit to help guide you in your conversations with young children. Print these coloring pages to use in the classroom and share this informational flyer.
DONATE to the KAT6 Foundation, Inc so that we can continue to drive research, support families and raise awareness. We challenge you to encourage your friends and family to donate $6 on this day for our KAT6 community.
Share KAT6 Foundation’s Rare Disease Day graphics on social media. Download them here.
For more ways to participate visit https://www.rarediseaseday.org/.