Each year the KAT6A Foundation recognizes International Rare Disease Day. On this day, we urge you to wear stripes and KAT6A/B awareness clothing to raise awareness for our very rare community. Last year we had several families advocate for RDD in their communities, schools and even in the press.

Ways you can support Rare Disease Day 2022:

  • Purchase an awareness T-SHIRT from our KAT6A Foundation Shop.  This year our “Rare” t-shirt design shows our solidarity with the rare disease community.  If you prefer a different design, browse our entire shop collection.  
  • Use our custom photo frame on Facebook and use it on your profile picture for the month of February. 
  • In an effort of global solidarity, you are invited to light or decorate your home with the Rare Disease Day colors at 7 PM your local time on 28 February 2022. #LIGHTUPFORRARE 
  • SHARE YOUR STORY with us and we will feature you in our blog and on social media. 
  • Spread awareness in your child’s school.  Use this toolkit to help guide you in your conversations with young children. Print this coloring page to use the classroom. 
  • Enter our rare disease day raffle for a chance to win a handcrafted quilt at https://donate.kat6a.org/fundraiser/quilt4rare
  • DONATE to the KAT6A Foundation, Inc so that we can continue to drive research, support families and raise awareness.  
  • For more ways to participate visit https://www.rarediseaseday.org/.