Gallery
Rare Should Never Mean Invisible
Rare Should Never Mean Invisible by Jade Greatbatch Eleven-year-old Christopher from Adelaide, South Australia is vibrant, funny and deeply compassionate. He is my cherished son and my constant “wingman.” He loves video games and, most of all, animals, especially Molly, our miniature dachshund. These simple joys sustain us amidst the daily realities of living […]
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Fyona’s Journey with KAT6: A German Family’s Story
Our story is filled with sadness, fear, and despair, but also with a great deal of hope and love. We are from Germany, in the state of Rhineland-Palatinate — more specifically, from the Westerwald region. We are a small family: mom (Jessica), dad (Daniel), and two children. Our “big” girl, Katelyn, just turned seven, and […]
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KAT6 Foundation: Leadership Update
Dear KAT6 Families, Friends, and Partners, We are writing to share an important update about the KAT6 Foundation’s leadership. The Board of Directors would like to share an important recent change to our organization. After eight years of incredible service to our community, Natacha Esber and Emile Najm, the founders of the KAT6 Foundation, have […]
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Help us support people and their families living with KAT6A and KAT6B syndromes. Your donations will fund vital research into KAT6A and KAT6B gene mutations and provide assistive equipment, technology, and therapies to families through our Empowered grants. All donations are tax deductible in the US and go to KAT6 Foundation, a nonprofit 501(c)(3).
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