International Rare Disease Day: February 28, 2022

Each year the KAT6A Foundation recognizes International Rare Disease Day. On this day, we urge you to wear stripes and KAT6A/B awareness clothing to raise awareness for our very rare community. Last year we had several families advocate for RDD in their communities, schools and even in the press. Ways you can support Rare Disease […]

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Sam at 31: Three Decades with a Rare Disorder – Jan 25, 2022

Please join us for a Zoom webinar presented by David and Beth Woodbury. Time: Jan 25, 2022 09:00 PM Eastern Time (US and Canada)   Description: Born in 1990, Sam Woodbury is Beth and David’s third child and has lived with them all his life. Home for them is in the forests of northern Maine […]

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KAT6A Foundation Annual Appeal : Now – December 31, 2021

Join our first ever KAT6A Foundation Annual Appeal today!   This year our goal is $50,000. If you or someone you love has been affected by KAT6A and KAT6B, please consider helping us to meet our fundraising goal for 2021.   Give between now and December 31st at the link below and double your fundraising […]

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Giving Tuesday: November 30, 2021

Black Friday and Cyber Monday are great opportunities to find gifts for your family and friends. Giving Tuesday is an opportunity to give gifts to the rest of the world.  This year, your donation will have DOUBLE THE IMPACT.  Digital Remedy has generously offered to match up to $20,000 in donations until December 31, 2021.   […]

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September 25 – October 3: KATwalk 2021!

Our fourth annual walk event will take place over 10 days.  You can choose to attend virtually or attend an in-person walk at select cities. We invite families and friends of individuals diagnosed with KAT6A and KAT6B disorders to raise awareness during this time. The KATwalk fundraiser is a vehicle that enables everyone to participate […]

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