SEPTEMBER 1st – 30th Our sixth annual walk event will take place in September. You can choose to participate virtually or attend an in-person walk at select cities. We invite families and friends of individuals diagnosed with KAT6 syndromes to raise awareness during this time. The KATwalk fundraiser is a vehicle that enables everyone to […]
To learn more about the speakers: Download Webinar Agenda This webinar promises an extraordinary opportunity to gain deep insights and understanding from esteemed experts in the field of neurodevelopmental disabilities. Our speakers are leaders in their respective areas of expertise, and their presentations will be followed by an engaging Q&A session. Allow us […]
Join us for the 5th International KAT6A & KAT6B Conference sponsored by the KAT6 Foundation! June 8, 2024 890 Elkridge Landing Road, Linthicum Heights, MD, USA The KAT6 Foundation’s annual conference aims to support individuals and their families living with KAT6A and KAT6B syndromes. With the goal to solidify KAT6A and KAT6B research internationally, […]
Workshop date: June 13th, 5:00-5:45 p.m. EST (USA and Canada) Presenter: Galilee Damiao, MS OTR/L Co-Presenter: Maudey Lockwood self-advocate and AAC user Workshop Description: Learn about AAC (Augmentative and Alternative Communication) text-based communication options. What is it? Who uses it and how? What is a communication regulation partner? How does text-based AAC fit into […]
Join us for a virtual webinar! May 16, 2023 at 9:00 PM Eastern Time (US and Canada) Speaker: Christy Baca About the speaker: Christy is the founder and owner of Texoma Swim Academy serving 5 counties in North Texas and Southern Oklahoma with adaptive swim instruction since 2013. She has been providing aquatic instruction […]
Join us for a virtual event on May 22, 2023 at 9:00 PM Eastern Time (US and Canada) Speaker: Amy Bergeson About the Speaker: Amy Bergeson is a Pediatric Speech Language Pathologist and mom to a 3 year old boy with a KAT6B genetic variant. Amy has worked for 18 years in an educational setting […]
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Join us for the 4th International KAT6A & KAT6B Conference sponsored by the KAT6 Foundation! April 1st 7:00 am – 5:00 pm Embassy Suites by Hilton Boston at Logan Airport 207 Porter Street, Boston, Massachusetts, 02128, USA This is a FREE event. Advance registration is mandatory. Deadline to register is March 10th. Register Now […]
Join us for a virtual event with Dr. Monica Dettin, author of “Luteolin promotes KAT6A gene expression,” a new publication in the Journal of Rare Diseases. May 3, 2023 09:00 AM Eastern Time (US and Canada) Dr. Dettin will summarize her publication methods and results of the study for the KAT6 Community. About […]
